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PEOPLE WITH ALBINISM DISABILITY

Challenge

Physical disability just like any other form of disability is a clear and present societal issue which has rendered PWDs vulnerable in families and communities in both urban and rural settings to the extent that the PWDs can’t access all their rights and services as human rights deem it. Albinism, is one of the disabilities is a result of lack of pigmentation (melanin) in the hair, skin and eyes, causing vulnerability to the sun and bright light. Due to this fact, almost all people with albinism are visually impaired and are prone to developing skin cancer. The UN data indicate that in some countries, the majority of persons with albinism aged between 30 and 40 years die from skin cancer. However, access to regular health checks, sunscreen, sunglasses and sun-protective clothing would prevent the disease. This has created gaps for PWA to fully participate in education, employment and other societal engagements. Persons with disabilities are being subjected to discrimination and face barriers on a daily basis; as a result, their participation on equal ground with others in society is hindered , they are deprived of their rights to inclusion in terms of public education and employment, living independently in the society, and freedom of movement.

Program

In order to bridge the protection gap and ensure that persons with disabilities enjoy the same standards of equality, rights and dignity enjoyed by all non-disabled persons, HIHD intervention tally with the Convention on the Rights of Persons with Disabilities. HIHD is committed to disability and development to realize respect for the human rights of persons with disabilities, their full and equal participation and an equal and inclusive society. The majority have limited access to basic health services, education and employment. HIHD support PWA to enhance Empowerment and Employability through Entrepreneurship Education Training (EET), Linkages, access to information, services and opportunities, Strengthening PWA’s small-scale businesses. In addition, HIHD support PWA to have access to healthcare and services includes providing sun glasses, body lotion and protective cloths.